PEER-REVIEWED PUBLICATIONS | Clinical Futures

PEER-REVIEWED PUBLICATIONS

Clinical Futures investigators are international experts in their clinical research related fields and have authored hundreds of pediatric research articles in leading peer-reviewed journals. From here, you can access Clinical Futures journal article abstracts by author, title, or year.

2025

Relationship between parental distress and proxy symptom reports in pediatric palliative care
Journal of pain and symptom management, 2025
Douglas Hill, Russell Nye, Jackelyn Boyden, Emily Johnston, Pamela Hinds, Sarah Friebert, Jori Bogetz, Tammy Kang, Matt Hall, Joanne Wolfe, Chris Feudtner, PPCRN Group

2024

The Home-based Experiences of Palliative and Hospice Care for Children and Caregivers (EXPERIENCE) Measure: Evaluation of psychometric properties
Journal of pain and symptom management, 2024
Jackelyn Boyden, Mary Ersek, Kimberley Widger, Judy Shea, Chris Feudtner

2023

Parent Priorities in End-of-Life Care for Children With Cancer
JAMA network open, 2023
Prasanna Ananth, Meghan Lindsay, Sophia Mun, Sarah McCollum, Veronika Shabanova, Sophia de Oliveira, Sarah Pitafi, Rebecca Kirch, Xiaomei Ma, Cary Gross, Jackelyn Boyden, Chris Feudtner, Joanne Wolfe

2022

The Design of a Data Management System for a Multicenter Palliative Care Cohort Study
J Pain Symptom Manage, 2022
Russell Nye, Douglas Hill, Karen Carroll, Jackelyn Boyden, Hannah Katcoff, Heather Griffis, Diego Campos, Matt Hall, Joanne Wolfe, Chris Feudtner

Home-Based Care for Children with Serious Illness: Ecological Framework and Research Implications
Children (Basel, Switzerland), 2022
Jackelyn Boyden, Douglas Hill, Gwenn Laragione, Joanne Wolfe, Chris Feudtner

2021

Developing a family-reported measure of experiences with home-based pediatric palliative and hospice care: a multi-method, multi-stakeholder approach
BMC Palliat Care, 2021
Jackelyn Boyden, Chris Feudtner, Janet Deatrick, Kimberley Widger, Gwenn Laragione, Blyth Lord, Mary Ersek

Pediatric palliative care parents' distress, financial difficulty, and child symptoms
J Pain Symptom Manage, 2021
Jackelyn Boyden, Douglas Hill, Russell Nye, Kira Bona, Emily Johnston, Pamela Hinds, Sarah Friebert, Tammy Kang, Ross Hays, Matt Hall, Joanne Wolfe, Chris Feudtner, PPCRN Group

Association Between Children With Life-Threatening Conditions and Their Parents' and Siblings' Mental and Physical Health
JAMA Netw Open, 2021
Chris Feudtner, Russell Nye, Jackelyn Boyden, Katherine Schwartz, Emilie Korn, Aaron DeWitt, Amy Waldman, Lisa Schwartz, Yuming Shen, Michael Manocchia, Rui Xiao, Blyth Lord, Douglas Hill

2020

What do parents value regarding pediatric palliative and hospice care in the home setting?
J Pain Symptom Manage, 2020
Jackelyn Boyden, Mary Ersek, Janet Deatrick, Kimberley Widger, Gwenn Laragione, Blyth Lord, Chris Feudtner

2019

The Association of Perceived Social Support with Anxiety over Time in Parents of Children with Serious Illnesses
J Palliat Med, 2019
Jackelyn Boyden, Douglas Hill, Karen Carroll, Wynne Morrison, Victoria Miller, Chris Feudtner