PEER-REVIEWED PUBLICATIONS | Clinical Futures

PEER-REVIEWED PUBLICATIONS

Clinical Futures investigators are international experts in their clinical research related fields and have authored hundreds of pediatric research articles in leading peer-reviewed journals. From here, you can access Clinical Futures journal article abstracts by author, title, or year.

2026

Integrating Electronic Patient-Reported Outcomes and Palliative Care in Pediatric Advanced Cancer: The PediQUEST Response Multisite Randomized Controlled Trial
Journal of clinical oncology : official journal of the American Society of Clinical Oncology, 2026
Veronica Dussel, Liliana Orellana, Maria Requena, Madeline Avery, Denise Becker, Christina Ullrich, Chris Feudtner, Jason Freedman, Tammy Kang, Elisha Waldman, Cynthia Gerhardt, Marie Bakitas, Justin Baker, Stefan Friedrichsdorf, Abby Rosenberg, Joanne Wolfe

2025

From worries to resilience: a qualitative study of the psychosocial experiences of diverse adolescents and young adults with heart failure and their caregivers
Cardiology in the young, 2025
Thomas Glenn, Cynthia Smith, Victoria Miller, Joanne Wolfe, Elizabeth Blume, Julie Lumeng, Kurt Schumacher, Melissa Cousino

Relationship between parental distress and proxy symptom reports in pediatric palliative care
Journal of pain and symptom management, 2025
Douglas Hill, Russell Nye, Jackelyn Boyden, Emily Johnston, Pamela Hinds, Sarah Friebert, Jori Bogetz, Tammy Kang, Matt Hall, Joanne Wolfe, Chris Feudtner, PPCRN Group

Research burden in pediatric cancer: A mixed methods study from the PediQUEST Response Trial
Journal of pain and symptom management, 2025
Erika Tsuchiyose, Deborah Feifer, Alexandra Merz, Madeline Avery, Ijeoma Eche-Ugwu, Opeyemi Awofeso, Liliana Orellana, Denise Becker, Chris Feudtner, Jason Freedman, Tammy Kang, Abby Rosenberg, Elisha Waldman, Christina Ullrich, Joanne Wolfe, María Requena, Veronica Dussel

2023

Surgical Intervention in Patients Receiving Pediatric Palliative Care Services
Pediatrics, 2023
Danielle Ellis, Russell Nye, Joanne Wolfe, Chris Feudtner

Medical and End-of-Life Decision-Making Preferences in Adolescents and Young Adults with Advanced Heart Disease and Their Parents
JAMA network open, 2023
Melissa Cousino, Victoria Miller, Cynthia Smith, Heang Lim, Sunkyung Yu, Ray Lowery, Karen Uzark, Emily Fredericks, Joanne Wolfe, Elizabeth Blume, Kurt Schumacher

Parent Priorities in End-of-Life Care for Children With Cancer
JAMA network open, 2023
Prasanna Ananth, Meghan Lindsay, Sophia Mun, Sarah McCollum, Veronika Shabanova, Sophia de Oliveira, Sarah Pitafi, Rebecca Kirch, Xiaomei Ma, Cary Gross, Jackelyn Boyden, Chris Feudtner, Joanne Wolfe

2022

The Design of a Data Management System for a Multicenter Palliative Care Cohort Study
J Pain Symptom Manage, 2022
Russell Nye, Douglas Hill, Karen Carroll, Jackelyn Boyden, Hannah Katcoff, Heather Griffis, Diego Campos, Matt Hall, Joanne Wolfe, Chris Feudtner

Home-Based Care for Children with Serious Illness: Ecological Framework and Research Implications
Children (Basel, Switzerland), 2022
Jackelyn Boyden, Douglas Hill, Gwenn Laragione, Joanne Wolfe, Chris Feudtner

End-of-life care quality for children with cancer who receive palliative care
Pediatric blood & cancer, 2022
Prasanna Ananth, Meghan Lindsay, Russell Nye, Sophia Mun, Chris Feudtner, Joanne Wolfe