Title

Using freelisting to understand shared decision making in ADHD: parents' and pediatricians' perspectives.

Year of Publication

2011

Number of Pages

236-44

Date Published

2011 Aug

ISSN Number

1873-5134

Abstract

<p><strong>OBJECTIVE: </strong>To compare and contrast notions of ADHD among pediatricians and parents of affected children to understand the perspectives they bring to shared decision making (SDM).</p>

<p><strong>METHODS: </strong>In this freelisting study, 60 parents of children with ADHD and 30 primary care pediatricians listed words reflecting their understanding of (1) Attention Deficit Hyperactivity Disorder (ADHD), (2) getting/offering help for ADHD, (3) talking to doctors/families about ADHD, and (4) "mental health." Smith's salience score established terms that were salient and cultural consensus analysis identified variation within subgroups of participants.</p>

<p><strong>RESULTS: </strong>Parents' terms reflected ADHD's effects on the child and family, while clinicians often mentioned school. Lists suggested differing needs and goals for clinicians and subgroups of parents in SDM: "time" for clinicians, "learning" and "understanding" for non-college educated parents, and "comfort" and "relief" for college educated parents. Neither parents nor clinicians framed ADHD in the same way as "mental health."</p>

<p><strong>CONCLUSION: </strong>Parents and clinicians, who conceptualize ADHD differently, should negotiate a shared understanding of ADHD as a basis for SDM. Treatment discussions should be tailored to encompass families' varied emotional and educational needs.</p>

<p><strong>PRACTICE IMPLICATIONS: </strong>Fostering SDM in primary care is consonant with notions of ADHD as distinct from mental health.</p>

DOI

10.1016/j.pec.2010.07.035

Alternate Title

Patient Educ Couns

PMID

20797833

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