TitlePediatric Oncology Provider Perceptions of a Pediatric Palliative Care Service: The Influence of Emotional Esteem and Emotional Labor.
Year of Publication2018
AuthorNumber of Pages1260-8
Date Published2018 May
ISSN Number1873-6513
Abstract<p><strong>CONTEXT: </strong>Pediatric palliative care consults for children with cancer often occur late in the course of disease and close to death, when earlier involvement would reduce suffering. The perceptions that pediatric oncology providers hold about the pediatric palliative care service (PPCS) may shape referral patterns.</p> <p><strong>OBJECTIVE: </strong>To explore how pediatric oncology providers at one institution perceived the hospital's PPCS and the way these perceptions may influence the timing of consultation.</p> <p><strong>METHODS: </strong>We conducted semi-structured qualitative interviews with pediatric oncology providers at a large children's hospital. Interviews were audio recorded, transcribed and analyzed by two coders using a modified grounded theory approach.</p> <p><strong>RESULTS: </strong>We interviewed 16 providers (10 physicians, 1 nurse practitioner, 2 social workers, 2 psychologists and 1 child life specialist). Three core perceptions emerged: (1) the PPCS offers a diverse range of valuable contributions to the care of children with advancing cancer; (2) providers held favorable opinions about the PPCS due to positive interactions with individual palliative care specialists deemed extraordinarily emotionally skilled; and (3) there is considerable emotional labor involved in calling a PPCS consult that serves as a barrier to early initiation.</p> <p><strong>CONCLUSION: </strong>The pediatric oncology providers in our study held a highly favorable opinion about their institution's PPCS and agreed that early consultation is ideal. However, they also described that formally consulting PPCS is extremely difficult because of what the PPCS symbolizes to families and the emotional labor that the provider must manage in introducing them. Interventions to encourage the early initiation of palliative care in this population may benefit from a focus on the emotional experiences of providers.</p> DOI10.1016/j.jpainsymman.2018.01.019
Alternate TitleJ Pain Symptom Manage
PMID29425881
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