Changes Over Time in Good-Parent Beliefs Among Parents of Children with Serious Illness: A Two-Year Cohort Study.

Year of Publication


Date Published

2019 Apr 23

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<p><strong>BACKGROUND: </strong>Parents of seriously ill children hold personal beliefs about what they should do to be good parents. How these beliefs change over time is unknown.</p>

<p><strong>OBJECTIVE: </strong>Describe the pattern of Good-Parent Beliefs over time, and determine whether parents' hopeful patterns of thinking, affect, and perceived child's health are associated with changes in beliefs at 12 and 24 months.</p>

<p><strong>METHODS: </strong>Our longitudinal sample included 124 parents of 100 children hospitalized with serious illness. We used latent transition models (LTM) to classify parents into groups with similar Good-Parent Beliefs during the baseline and follow-up periods, and modeled the change in good-parent beliefs over time as a function of covariates using generalized linear mixed models.</p>

<p><strong>RESULTS: </strong>Two parent belief profiles emerged from the LTM: Loved ("Making sure my child feels loved", n=61 at baseline) and Informed ("Making informed decisions", n=63 at baseline). At 12 months, 21 parents (20.4%) had moved into the Loved group and no parents transitioned to the Informed group. By 24 months, 8 parents transitioned to the Loved group and 4 to the Informed group (13.04%). Transition into the Loved group was associated with parents' baseline degree of hopeful thinking and positive perceptions of child's health at baseline.</p>

<p><strong>CONCLUSION: </strong>Some parents change their parenting priorities over time. Hopeful patterns of thinking and perception of child health appear to predict change. Clinicians should regularly reevaluate Good-Parent Beliefs over time to promote priority-congruent dialogue.</p>



Alternate Title

J Pain Symptom Manage




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