First name
Tamar
Last name
Gomes

Title

Perspective on the Development of a Large-Scale Clinical Data Repository for Pediatric Hearing Research.

Year of Publication

2020

Number of Pages

231-238

Date Published

2020 Mar/Apr

ISSN Number

1538-4667

Abstract

<p>The use of "big data" for pediatric hearing research requires new approaches to both data collection and research methods. The widespread deployment of electronic health record systems creates new opportunities and corresponding challenges in the secondary use of large volumes of audiological and medical data. Opportunities include cost-effective hypothesis generation, rapid cohort expansion for rare conditions, and observational studies based on sample sizes in the thousands to tens of thousands. Challenges include finding and forming appropriately skilled teams, access to data, data quality assessment, and engagement with a research community new to big data. The authors share their experience and perspective on the work required to build and validate a pediatric hearing research database that integrates clinical data for over 185,000 patients from the electronic health record systems of three major academic medical centers.</p>

DOI

10.1097/AUD.0000000000000779

Alternate Title

Ear Hear

PMID

31408044

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