First name
Jessica
Middle name
A
Last name
Casas

Title

The codesign of an interdisciplinary team-based intervention regarding initiating palliative care in pediatric oncology.

Year of Publication

2018

Date Published

2018 Apr 07

ISSN Number

1433-7339

Abstract

<p><strong>PURPOSE: </strong>Children with advanced cancer are often not referred to palliative or hospice care before they die or are only referred close to the child's death. The goals of the current project were to learn about pediatric oncology team members' perspectives on palliative care, to collaborate with team members to modify and tailor three separate interdisciplinary team-based interventions regarding initiating palliative care, and to assess the feasibility of this collaborative approach.</p>

<p><strong>METHODS: </strong>We used a modified version of experience-based codesign (EBCD) involving members of the pediatric palliative care team and three interdisciplinary pediatric oncology teams (Bone Marrow Transplant, Neuro-Oncology, and Solid Tumor) to review and tailor materials for three team-based interventions. Eleven pediatric oncology team members participated in four codesign sessions to discuss their experiences with initiating palliative care and to review the proposed intervention including patient case studies, techniques for managing uncertainty and negative emotions, role ambiguity, system-level barriers, and team communication and collaboration.</p>

<p><strong>RESULTS: </strong>The codesign process showed that the participants were strong supporters of palliative care, members of different teams had preferences for different materials that would be appropriate for their teams, and that while participants reported frustration with timing of palliative care, they had difficulty suggesting how to change current practices.</p>

<p><strong>CONCLUSIONS: </strong>The current project demonstrated the feasibility of collaborating with pediatric oncology clinicians to develop interventions about introducing palliative care. The procedures and results of this project will be posted online so that other institutions can use them as a model for developing similar interventions appropriate for their needs.</p>

DOI

10.1007/s00520-018-4190-5

Alternate Title

Support Care Cancer

PMID

29627863

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