First name
Connie
Middle name
M
Last name
Ulrich

Title

Top Ten Tips Palliative Care Clinicians Should Know About Their Work's Intersection with Clinical Ethics.

Year of Publication

2021

Number of Pages

Date Published

2021 Nov 22

ISSN Number

1557-7740

Abstract

<p>Palliative care (PC) subspecialists and clinical ethics consultants often engage in parallel work, as both function primarily as interprofessional consultancy services called upon in complex clinical scenarios and challenging circumstances. Both practices utilize active listening, goals-based communication, conflict mediation or mitigation, and values explorations as care modalities. In this set of tips created by an interprofessional team of ethicists, intensivists, a surgeon, an attorney, and pediatric and adult PC nurses and physicians, we aim to describe some paradigmatic clinical challenges for which partnership may improve collaborative, comprehensive care.</p>

DOI

10.1089/jpm.2021.0521

Alternate Title

J Palliat Med

PMID

34807737
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Title

COVID-19: Advancing Empirical Bioethics Research.

Year of Publication

2020

Number of Pages

1-3

Date Published

2020 Jul 13

ISSN Number

2329-4523

Abstract

<p>Research is essential to advance knowledge of emerging and reemerging infectious diseases and to improve the effectiveness of therapies and the quality of care for all patients. Indeed, with more than 12 million individuals infected and nearly 560,000 deaths worldwide at the beginning of July 2020, research is critical to identify and minimize the devastating effects of SARS-CoV-2 and COVID-19 in both the adult and pediatric populations. The morbidity and mortality statistics alone demand immediate attention. Research on a vaccine and on life-saving therapeutics, including antiviral regimens, is the highest priority currently. And, there is still much we need to learn about the pathogenicity of the virus and the variations in its severity and clinical course.</p>

DOI

10.1080/23294515.2020.1785043

Alternate Title

AJOB Empir Bioeth

PMID

32657635
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Title

Parenting in Childhood Life-Threatening Illness: A Mixed-Methods Study.

Year of Publication

2018

Number of Pages

208-15

Date Published

2018 Feb

ISSN Number

1557-7740

Abstract

<p><strong>BACKGROUND: </strong>Parenting children with life-threatening illness (LTI) and their healthy siblings requires parents to consider their various needs.</p>

<p><strong>OBJECTIVE AND METHODS: </strong>We conducted a concurrent, cross-sectional mixed-methods study to describe challenges parents face prioritizing tasks and goals for each child with qualitative data, compare parents' tasks and goals for children with LTI and healthy siblings with quantitative data, and describe parenting in terms of the process of prioritizing tasks and goals for all children in the family.</p>

<p><strong>RESULTS: </strong>Participants included 31 parents of children with LTI who have healthy siblings and were admitted to a children's hospital. Qualitative interviews revealed how parents managed children's needs and their perceptions of the toll it takes. Quantitative data revealed that parents prioritized "making sure my child feels loved" highest for ill and healthy children. Other goals for healthy siblings focused on maintaining emotional connection and regularity within the family and for ill children focused on illness management. Mixed-methods analysis revealed that parents engaged in a process decision making and traded-off competing demands by considering needs which ultimately transformed the meaning of parenting.</p>

<p><strong>DISCUSSION: </strong>Future research can further examine trade-offs and associated effects, how to support parent problem-solving and decision-making around trade-offs, and how to best offer social services alongside illness-directed care.</p>

DOI

10.1089/jpm.2017.0054

Alternate Title

J Palliat Med

PMID

28972873
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